FOR GREGORY

Periodically I will add posts here if the sources provide additioanl informaiton on how to think about and deal with Dementia/ Alzheimer's Disease.

PLEASE NOTE:


SCROLL DOWN FOR TEXT and BIBLIOGRAPHY from DAI WEBINAR 2/22-23/2017. You can also find this information on my website: www.horvich.com


Even though this blog is now dormant (see info below) there are many useful, insightful posts. Scroll back from the end or forward from the beginning. My guess is that you could spend a lot of time here and maybe learn or experience a thing or two about living with and loving someone with Dementia/Alzheimer's or maybe come away with the feeling that "you are not alone" in YOUR work with the same!


• • • • •


THIS WAS THE FINAL POST TO THIS SITE BEFORE IT WENT DORMANT.


Happy New Year 2016. With a new year comes new beginnings and sometimes endings. If I am personally progressing and if I am doing a good job in my grieving Gregory's death; if I have been able to learn my lessons in living and loving someone diagnosed with Dementia/ Alzheimer's; if I am to get on with my life ... I need to bring this Alzheimer's blog to an end since my writing has been dealing less with Dementia/ Alzheimer's and more with life after Dementia/ Alzheimer's.


Of course, I will always continue to work for and support fair treatment on behalf of people with Dementia/ Alzheimer's and may post here from time to time. Also, there are many wonderful posts here through which you may browse.


With this change, I will continue and reinvigorate my "michael a. horvich writes" blog which deals with grieving Gregory's death, life lessons, personal experiences, observations, memoirs, dreams, and humor in essay and poetry, as well as an attempt now and then at sharing a piece of fiction.


Please follow me there by clicking http://mhorvich.blogspot.com or click the link located on the right side of this page.


Finally, COMMENTS are always important to me and you can still comment on the posts on this blog! CLICK "Comments" and sign in or use "Anonymous." Leave your name or initials if you wish so I'll know it's you? Check the "Notify Me" box to see my reply to you.



Monday, November 2, 2015

Kate, my friend in Australia who is a great advocate for people diagnosed with Dementia/ Alzheimer's and who herself has that diagnosis, in a recent blog discusses care homes. In previous posts she talks about the unfairness of how so many people in care for Dementia are treated, especially without regard for their desires, rights, etc. And I agree with her very much. She posted the following to soften her "attack" on caregiver's and also describes the wonderful "Group Homes" she visited in Australia. Here are my comments to her post:

Kate, Your description of "Group Homes" sounds wonderful. I know that there is a movement afoot to move from a "Hospital/Medical Model" of care for Dementia Residents to a "Home/Family Model" and I truly embrace that move.

I also appreciated your "apology" to support facilities and caregivers who certainly are trying their best to provide loving, empathetic care for their spouses and family members, although not always under the best of circumstances.

Sometimes, one must settle for the lesser evils! However, I believe that even in a "Hospital Model" facility, the care can be much more "Home Model" like. Also, the details of what might go on at any facility is often dictated by the stage of care that the residents might be at but that doesn't mean they should have to "settle for less" than humane, best practices! 

I know that at Gregory's facility, many if not most of the residents on his floor are not able to be as active and "family" oriented as we would hope, but the care and the ambience of the place certainly can be better. The health care, medical services are amazingly excellent, especially with residents who can not share their needs, discomforts, pains, and illness symptoms. The social/emotional environment, however can bemuch better.

My continuing quest is to share my observations, having been with Gregory almost every day, with the administration, managers, doctors, and department heads, etc. I am excited and pleased that they are eager to hear my feedback and we have scheduled a lunch meeting (I'll bring the food) in which I can share my observations and suggestions with everyone at one time and then open it to Q and A.

Instead of giving compliments, observations, blames, suggestions for improvement, etc ... I plan on creating a "fantasy story" of what the ideal Memory Care Unit could look like based on the Lieberman Center's physical plant parameters and based on their target population of residents. Wish me luck. I will be sharing the story on my BLOG in the not too distant future.

Thank you Kate, for helping me to continue to educate myself in the areas of: 1) care-giving, 2) appropriate language use when discussing Dementia/ Alzheimer's, 3) seeking feedback from people diagnosed with Dementia on how they would like to cared for, 4) appropriate (if any) use of psychotropic drugs, 5) living beyond the diagnosis and living well with the diagnosis of Dementia/ Alzheimer's, 6) and I am sure etc, etc etc!


http://kateswaffer.com/2015/11/01/safety-vs-autonomy-in-residential-care/

http://kateswaffer.com/2015/11/02/open-letter-to-group-homes-australia/

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