Impermanence

Things are changing again. For the last week or two I have been weighing in on the heavier side of sad when compared to joy.

When Gregory settles into a new "phase" of dementia; I compensate, get creative, learn to provide, cope, and as well get lulled into the false sense of security that this is how it will remain forever.

You have read about his recent "burbling" as a way of "playing with sounds" on his lips and in his mouth and to delight his ears. You have also read about his "routines" which while are not communication do provide positive interaction.

When Gregory is upset and tries to tell you something or when he is calm and tries to explain something he has plenty of words and sounds to use but on the outside, to you or me, they make no sense.

Most of the time he would be calm, content and happy. Now and then he would get upset but that was the exception.

When he would be upset I went into my, "It's all OK. Everything is taken care of. You have nothing to worry about. I have arranged everything." He would eventually ask, "Really?" And I assure him, "Yes." He would calm down. "Oh, good," he would reply.

When he was not upset and trying to explain something I would simply say, "I understand." or "I know." And that would usually satisfy him.

While I enjoyed those interactions and he was happy and alert and calm during that period, my antenna went up anyway watching for where this phase would go.

Recently he seems sad, upset, and not calm. His burbling and routine playing has moved into perseveration with the moods, ups and downs, happys and sads, cycling on and on.

In his interactions, he will become assertive, intense, and demanding. He seems less calm, content, and happy at this time.

It seems as though he gets into a loop and he cannot get out of it by himself. When he does this, the loop goes from one mood to the next quickly with more of them negative than positive.

When Manny or I am with him, we can usually defuse his behavior. When Gregory is with the group watching TV or in an activity before or after Manny or my being there, it is more difficult to control.

Several times he was removed from the group by an aide who was eventually able to calm him down. Recently they had to give Gregory an Ativan (drug for anxiety,) which didn't work so they gave him an Haldol (an antipsychotic as well as other conditions.)

Gregory is a strong man, and a big man, and when he gets upset the staff's concern is for Gregory's own safety and the safety of those around him. Thus the medications. The Lieberman nurses only use medications as a last resort and are very careful with that. I trust them.

So meanwhile, my soul is heavy, hoping that Gregory settles down into an acceptable behavior pattern again, which has happened in the past. At the same time, my intellect is preparing and wondering what steps might need to be taken next.

The psychiatrist has been involved and I have had discussions with the head nurse so I am not on my own in making these decisions. But I am on my own in dealing with my emotions and as I began this post ... the sad side has the advantage right now.

I will keep you informed.

Meditation: Round 2: Practice 4 & 5

Just to keep track, I skipped Practice 4 because I was ill.

Practice 5 presented an interesting shift for me in several ways.

1) Previously, a day or two before our meeting, I would think about possible Intentions and Heartfelt Desires. This time, I decided to wait and see what "arrived" as I was settling in and getting into the meditation.

2) Another thing that I am more aware of is a "spiraling" of lessons with each new appearance bringing a deeper, more coherent understanding of the idea, emotion, experience, etc that presents itself.

3) During the period of my deepest calm, I became aware of what I would describe as Black (visually) but more An Absence (emotionally & intellectually.) Things would come and go without disrupting my meditation.

At one point a man showed up, I acknowledged him and continued my meditation without needing to know who he was, or what he wanted, or what he represented.

Another time a beautiful, sweet, pink fondant ribbon swirled in my Black, maybe because it was also my birthday and I was thinking of cake but it didn't matter I continued my meditation.

4) At times one needs to pause and enter the moment as it presents itself for lessons to be learned, but other options include setting it aside to deal with at a later time, or deciding that it is not important to deal with the distraction at all and recognizing it for what it is: a distraction.

During Practice 5 Corinne decided to spend a lot of time focusing on the body, energy, and health. While I did "scan" my body and reaffirm my excellent health, I did not end up staying with Corinne's guidance but rather revisited the concept of Essential Self which Corinne had mentioned in her opening comments.

She talked about the difficulty some people have in looking closely at their Essential Self, that self which is closer to being in touch with the universe and away from one's experiences, societal agreements, religious figure and parent pronouncements. In other words free from any biases, real or imagined, true or not, that tend to color who we are, what we think, and how we approach our day to day lives. Our PURE ESSENCE.

In the past I have had trouble focusing on my Essential Self, knowing it exists deep within me but somehow not being able or comfortable enough to dig down for a close look. In relation to the Essential Self, this time I revisited a Triumvirate of Self that I have been aware of, fine tuned it, and added the Essential Self as a fourth level.

I started out with my Public Self which I allow everyone to see, my Private Self which I only allow close loved ones to see, and my Secret Self which only I know about and which I would never share with anyone.

This understanding allowed me to arrive at the fourth self or Essential Self, as defined above. It was easier to look at my Essential Self without fear or difficulty when seeing it on this Continuum of Self from most external and visible to most internal and sacred.

Each time I experience a Mindful Meditation Practice, Yoga Nidra, I seem to arrive at a new place of comfort with myself, my relationship with Gregory, and with my world. Time well spent.

Conversations

Sometimes I will have a conversation with Gregory after a trying exchange. I will explain why I reacted as I did and how I plan to try to react in the future. I explain my rational. Most likely he does not remember the conversation but I cannot say for sure that he doesn't. What I do know is that I cannot bring myself to change my behavior or approach to him without trying to explain it. Possibly it is my way of explaining to myself what I need to do to be a better caregiving partner and possibly my way of holding onto our relationship as a "couple" rather than being an individual making unilateral decisions. Gregory seems to appreciate my sharing my feelings with him.

This is how one such "conversation" went last night. While he was not remembering how to put on his night shirt, brush his teeth, or swallow his pills I held back and said or did nothing. I have found that if I try to anticipate his needs, guess his needs, or intervene too soon ... I only serve as a further distraction. Sometimes given enough time he will solve his own problem. Periodically I tell him that "I am holding back to give you space." He seems to appreciate that.

I have decided (for now) and told him that I do not think it is fair or respectful to him when I take over without being asked. I reviewed that we have talked about previously about my helping often being more of a distraction and hinderance than a help. I told him that if he needed help, he needed to ask for it and I would give it freely, gladly, and supportively.

But I just need to stop jumping in too soon (especially if it isn't a matter of safety.) This is a very difficult stance for me because it is very difficult for me to just watch or see him suffer and do nothing. He may or may not remember to ask for help but I will mention this every now and then as a possible reminder. Obviously I will also be monitoring his needs and make changes as needed. For example if he continues having trouble swallowing his medications and vitamins, I have found a liquid substitute. I just don't want to assume that it is needed now.