While I was observing Gregory in Physical Therapy, I had a chat with Gertrude who was waiting to use the bicycle petals after Gregory. Turns out she is 100 years old, which was confirmed when I looked at the PT associate bemusedly for confirmation.
Margaret was at least as alert as you and I, well groomed, friendly and chatty. He husband had died some twelve years previously with an added, "I miss him but what can you do when you continue to wake up every morning."
She commented on what a handsome gentleman Gregory is and while empathetic did not feel the need to go on about how young to have Alzheimer's. "So sorry for both of you. It is what it is, I guess," she said warmly.
I told her we have been "partners" for over 39 years (still searching for the best descriptor since I am uncomfortable with "husband" because it implies sex types and roles. We are not husband and wife.)
She lit up and shared that she had her husband for some 75 years. We commiserated how difficult it is loosing the one you love (her's quickly, mine over the last ten years.)
Maybe it is because I came out Gay during the 1950's, and have lived a large part of my life through a time when being Gay was wrong, a sin, looked down on, punished, shunned, minimally - not recognized, etc; that I am still amazed when being Gay and having a life mate is taken as a mute issue.
The love of 39 years is what is recognized. My sacrifices is what is recognized. Our love for each other is what is recognized. My role in making all medical and health and life decisions for Gregory, as his husband - mate - lover - life partner - wife - soul mate - etc, is what is recognized and respected by family, friends, and everyone we have come in contact with at The Lieberman Center.
It was so refreshing and wonderful and life reaffirming to chat with Gertrude.
Showing posts with label Life Partner. Show all posts
Showing posts with label Life Partner. Show all posts
Saturday, March 22, 2014
Sunday, February 2, 2014
A Letter to a Friend
Hi Susan. I am doing well. Still numb and very sad but at this point Gregory is being well taken care of. He is no longer the man you knew just a short while ago. I am grateful for his current home, one of the best Memory Care Facilities in Chicago, and am grateful to begin learning a new role as Secondary Care Giver. I do not have to go it alone but have a team of nurses, social workers, dietitians, doctors, therapists, etc to help Gregory as his needs continue to change.
Eventually I'll get on with my life. I never martyred myself to Gregory's disease and continued to have an identity of my own but did devote a lot of time, and energy, and love on an increasing basis as Gregory's needs increased. My identity, however, did include having a life partner with which to share my days. With him in his new home and me in the old one, I have to figure out who I am as a single person and what the angle of my days will look like.
Now, while I see him a couple of hours every day, I have lots of time on my hands and not yet the motivation to do anything with that time. I think the first thing I'll involve myself in is tailoring the condo to my needs and removing those things that met Gregory's needs. I will continue my writing and begin again to pursue a publisher for my memoirs which were organized at Ragdale during my residency in 2010. I hope to begin traveling again.
What I do not seem to have, and being good to myself since it has only been two weeks since this major upheaval, is any idea of what the future will hold. No goals. No ambitions. No hopes and desires. Except that Gregory be well taken care of and that I continue to be healthy and alive.
In some way, it is as though this moment has always been arriving and always leaving at the same instant yet doesn't exist in reality. Gregory is very visibly living in the moment, no past and no future and not really much of a present as we know it, and perhaps for now, I am living in the moment as well.
Love you, miss you, keep your guest room ready as one day I will arrive at your doorstep (with notice :-)
Fondly,
Michael
Eventually I'll get on with my life. I never martyred myself to Gregory's disease and continued to have an identity of my own but did devote a lot of time, and energy, and love on an increasing basis as Gregory's needs increased. My identity, however, did include having a life partner with which to share my days. With him in his new home and me in the old one, I have to figure out who I am as a single person and what the angle of my days will look like.
Now, while I see him a couple of hours every day, I have lots of time on my hands and not yet the motivation to do anything with that time. I think the first thing I'll involve myself in is tailoring the condo to my needs and removing those things that met Gregory's needs. I will continue my writing and begin again to pursue a publisher for my memoirs which were organized at Ragdale during my residency in 2010. I hope to begin traveling again.
What I do not seem to have, and being good to myself since it has only been two weeks since this major upheaval, is any idea of what the future will hold. No goals. No ambitions. No hopes and desires. Except that Gregory be well taken care of and that I continue to be healthy and alive.
In some way, it is as though this moment has always been arriving and always leaving at the same instant yet doesn't exist in reality. Gregory is very visibly living in the moment, no past and no future and not really much of a present as we know it, and perhaps for now, I am living in the moment as well.
Love you, miss you, keep your guest room ready as one day I will arrive at your doorstep (with notice :-)
Fondly,
Michael
Saturday, March 9, 2013
Optimism
Interesting shifts take place the longer one deals with being an Alzheimer's Caregiver Partner. I realized that while taking care of my partner (keeping him as safe, clean, content, useful, busy, etc) I have forgotten to figure myself into the equation.
Not that I don't take care of myself but the personalities of the Caregiver Partners seem to merge with my own taking second place. All thoughts are shadowed by Gregory and his Alzheimer's.
The task is all consuming physically, emotionally, psychologically, and intellectually with little time left for myself. People always say, "Are you taking care of yourself?" While they are well meaning, it tells me that they do not really understand what it takes to be in this position.
Of course I am taking care of myself as much as possible. I eat well. I continue to sleep well. I can got out on my own when Gregory's Companions are with him. I read, go to the theater, eat candy, enjoy cooking, feel good about the order I am able to create for Gregory and me in our home.
But the emotional side of seeing your loved one continue to disintegrate in front of your eyes on a daily basis, unable to do today what he could do yesterday, who knows about tomorrow, and to try to untangle the messy web of associations he gets himself into cannot be put to rest.
The constant monitoring of his needs, actions, behaviors, thoughts is a job that cannot take a ten minute break, a weekend off, let alone a vacation. It is with you all the time even when I are not with Gregory.
Even while "taking care of yourself" it is very difficult to leave the mental and emotional part behind. It reminds me of people to try to escape from their problems by going on vacation or more extremely running away from their problems only to realize the problems came along with them. You can avoid your problems but that will not help solve them!
But then this shift I first spoke of began to take place. After 35+ years of being part of a loving, respectful, growing relationship and after 10+ years of being the lead caregiver partner, one begins to reestablish his own individuality and his own identity.
Yes I am still Gregory's Life Partner. Yes I am the lead member of his caregiving team. But I am also me and I am separate and I am different and I am unique and I will somehow come out on the other side of this Alzheimer's as a whole me.
This shift began to take place during my Yoga Nidra Mindful Meditation sessions when I realized that all the work done during the meditation was about Gregory instead of about me.
Once I made that shift I found that by making the meditation, the quest, the ability to quiet the noise in my head about me and not him, I was in a better place. I could be better with and for Gregory as well as for myself.
In other words I began to concentrate on me NOT on him and we all received the benefits. For example, NOT "How can I be better for Gregory" but rather "How can I be a better person." One step further is accepting my desires in the present tense, already present and already functioning. I AM A BETTER PERSON!
This BLOG's writing was sparked by today's horoscope as added below. I realized as I read it and identified with what it had to say, that I was thinking about me and my life and my future and not necessarily Gregory's. This may sound selfish but it is not.
My meditations will change me ... not Gregory. It will help me create a more patient, calm, loving environment for Gregory but he will still have to be the one to live in his world. I will work at understanding his world, but I do not have to live in it!
From: http://www.dailyom.com
March 9, 2013
Lifted by Outlook
Aries Daily Horoscope
Not that I don't take care of myself but the personalities of the Caregiver Partners seem to merge with my own taking second place. All thoughts are shadowed by Gregory and his Alzheimer's.
The task is all consuming physically, emotionally, psychologically, and intellectually with little time left for myself. People always say, "Are you taking care of yourself?" While they are well meaning, it tells me that they do not really understand what it takes to be in this position.
Of course I am taking care of myself as much as possible. I eat well. I continue to sleep well. I can got out on my own when Gregory's Companions are with him. I read, go to the theater, eat candy, enjoy cooking, feel good about the order I am able to create for Gregory and me in our home.
But the emotional side of seeing your loved one continue to disintegrate in front of your eyes on a daily basis, unable to do today what he could do yesterday, who knows about tomorrow, and to try to untangle the messy web of associations he gets himself into cannot be put to rest.
The constant monitoring of his needs, actions, behaviors, thoughts is a job that cannot take a ten minute break, a weekend off, let alone a vacation. It is with you all the time even when I are not with Gregory.
Even while "taking care of yourself" it is very difficult to leave the mental and emotional part behind. It reminds me of people to try to escape from their problems by going on vacation or more extremely running away from their problems only to realize the problems came along with them. You can avoid your problems but that will not help solve them!
But then this shift I first spoke of began to take place. After 35+ years of being part of a loving, respectful, growing relationship and after 10+ years of being the lead caregiver partner, one begins to reestablish his own individuality and his own identity.
Yes I am still Gregory's Life Partner. Yes I am the lead member of his caregiving team. But I am also me and I am separate and I am different and I am unique and I will somehow come out on the other side of this Alzheimer's as a whole me.
This shift began to take place during my Yoga Nidra Mindful Meditation sessions when I realized that all the work done during the meditation was about Gregory instead of about me.
Once I made that shift I found that by making the meditation, the quest, the ability to quiet the noise in my head about me and not him, I was in a better place. I could be better with and for Gregory as well as for myself.
In other words I began to concentrate on me NOT on him and we all received the benefits. For example, NOT "How can I be better for Gregory" but rather "How can I be a better person." One step further is accepting my desires in the present tense, already present and already functioning. I AM A BETTER PERSON!
This BLOG's writing was sparked by today's horoscope as added below. I realized as I read it and identified with what it had to say, that I was thinking about me and my life and my future and not necessarily Gregory's. This may sound selfish but it is not.
My meditations will change me ... not Gregory. It will help me create a more patient, calm, loving environment for Gregory but he will still have to be the one to live in his world. I will work at understanding his world, but I do not have to live in it!
• • • • •
From: http://www.dailyom.com
March 9, 2013
Lifted by Outlook
Aries Daily Horoscope
Your optimism can spark your determination today, providing you with the motivation you need to reach a new phase of accomplishment. The visions of a more beautiful future that you entertain while working and playing will likely inspire you to double your efforts where your ambitions are concerned. You may feel buoyant and energized as you contemplate the fulfillment of your expectations. And because you are likely approaching your tasks with an attitude of confidence today, you may find that you do not hesitate when presented with auspicious opportunities. If you take pleasure in your quest for accomplishment, you will likely have little trouble looking on the brighter side of life.
The most potent forms of motivation are often those that originate within us, fueled by the joy we feel when we contemplate our positive expectations. When we focus on our dreams and hopes, we need not concern ourselves greatly with the trials we face in the pursuit of our ambitions. Though we must address these issues directly, they do not cause anxious thoughts to blossom in our minds. Rather, we choose to treat tribulation pragmatically by doing all that is within our power to overcome the roadblocks that stand in the way of our eventual success. Our spirits never flag and we can take pride in the fact that we are doing our best to meet our goals, no matter what the outcome of our efforts is. The optimism you carry in your heart today will energize you and ensure that you stay strong in the face of adversity.
The most potent forms of motivation are often those that originate within us, fueled by the joy we feel when we contemplate our positive expectations. When we focus on our dreams and hopes, we need not concern ourselves greatly with the trials we face in the pursuit of our ambitions. Though we must address these issues directly, they do not cause anxious thoughts to blossom in our minds. Rather, we choose to treat tribulation pragmatically by doing all that is within our power to overcome the roadblocks that stand in the way of our eventual success. Our spirits never flag and we can take pride in the fact that we are doing our best to meet our goals, no matter what the outcome of our efforts is. The optimism you carry in your heart today will energize you and ensure that you stay strong in the face of adversity.
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