FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!

PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.

Showing posts with label Opportunities. Show all posts
Showing posts with label Opportunities. Show all posts

Saturday, December 12, 2015

Perspective Changes

Interesting how one's perceptions of life change when an important person in one's life dies.

When my mom and dad died, I wrestled with how someone could be here today and gone tomorrow. Wondered where that energy went. Wonder where our time together went from my being a child, to a teenager, to a young adult, to a full grown adult (if one ever becomes full grown.)

I missed them. I grieved not only their death but what I considered the missed opportunities for parent/son relationships and how different it could have been if they were different, if I was different. 

Acknowledged that I was grateful for many opportunities they did provide and for the love that existed. Acknowledged that they did the best job of parenting that they could and that I did the best job of "offspringing" that I could.

Now, with Gregory's passing, my perceptions of time have been shifting and the shift has caused me to do some deeper thinking.

Gregory and I lived, and we worked at living well for twelve years, with his diagnosis of Dementia/Alzheimer's. At times our life felt normal and at times we also felt like we were living on a roller coaster as his needs confounded, our interactions became surreal, his abilities failed and resurfaced only to finally fail again.

Now when I think about those twelve years, it feels like minutes. At the time it felt like forever, but now that the confusion, frustration, anger, sorrow, fear, etc no longer exists, it feels like moments.

Gregory spent the last 18 months of his life at the Lieberman Center for Health and Rehabilitation on the Alzheimer's Special Care Unit. At the time it was a day in and day out activity. Grateful to Manny for providing not only care and safety for Gregory but also for the love, socialization, and life enrichment he provided on a day to day basis.

When Gregory's health needed extra attention or his medications needed rebalancing or when his difficult behaviors needed a look see; my life would feel topsy turvy. But once the Lieberman nurses, doctors, hospice care, and I did our problem solving; things settled down for both Gregory and me.

Now, with Gregory on his next adventure, without my daily visits, and the Care Conferences, and the monitoring of his daily needs and treatment;  it feels like Lieberman was but a breath.

During the three days it took Gregory to die, I saved many vivid, sometimes difficult and sometimes joyful, memories of the process. None-the-less it feels like those three days were shrouded by a certain numbness. 

The planning of two tributes for Gregory was easy. Gregory's Memorial at the condo (attended by over 100 family and friends) was gratifying and consoling as was the Lieberman Memorial to thank them for their care and support (attended by over 150 staff, residents, and families at Lieberman the following week.)

Now, when I think of Gregory, it feels like his dying was but an instant and at the same time that he has always been dead, when if fact it is just over two months since he died. Strange feeling - ALWAYS been dead.

The thoughts which next occupy my mind then ... based on Gregory and my twelve years seeming like a moment, and his Lieberman stay feeling like a breath, and his death feeling like not only an instant but also forever ... are that my life, now, will last just a few moments longer with the lesson being that I must live each day to its fullest doing things that matter to me, spreading joy and love whenever I can, and doing the best I can without being too unforgiving of myself and my weaknesses and being forgiving of others. 

• • •

In this thinking and these awarenesses, I focus on the buddhist teachings which explain that our suffering is based on permanent attachment to things which are ever changing. Nothing is permanent. 


Thus early Buddhism declares that in this world there is nothing that is fixed and permanent. Every thing is subject to change and alteration. "Decay is inherent in all component things," declared the Buddha and his followers accepted that existence was a flux, and a continuous becoming.

According to the teachings of the Buddha, life is comparable to a river. It is a progressive moment, a successive series of different moments, joining  together to give the impression of one continuous flow. It moves from cause to cause, effect to effect, one point to another, one state of existence to another, giving an outward impression that it is one continuous and unified movement, where as in reality it is not. The river of yesterday is not the same as the river of today. The river of this moment is not going to be the same as the river of the next moment. So does life. It changes continuously, becomes something or the other from moment to moment.

Take for example the life of an individual. It is a fallacy to believe that a person would remain the same person during his entire life time. He changes every moment. He actually lives and dies but for a moment, or lives and dies moment by moment, as each moment leads to the next. A person is what he is in the context of the time in which he exists. It is an illusion to believe that the person you have seen just now is the same as the person you are just now seeing or the person whom you are seeing now will be the same as the person you will see after a few moments. 

Even from a scientific point of view this is true. We know cell divisions take place in each living being continuously. Old cells in our bodies die and yield place continuously to the new ones that are forming. Like the waves in a sea, every moment, many thoughts arise and die in each individual . Psychologically and physically he is never the same all the time. Technically speaking, no individual is ever composed of the same amount of energy. Mental stuff and cellular material all the time. He is subject to change and the change is a continuous movement.

Impermanence and change are thus the undeniable truths of our existence. What is real is the existing moment, the present that is a product of the past, or a result of the previous causes and actions. Because of ignorance, an ordinary mind conceives them all to be part of one continuous reality. But in truth they are not.

The various stages in the life of a man, the childhood, the adulthood, the old age are not the same at any given time. The child is not the same when he grows up and becomes a young man, nor when the latter turns into an old man. The seed is not the tree, though it produces the tree, and the fruit is also not the tree, though it is produced by the tree.

Taken from: 

Saturday, April 6, 2013

Companion

Gregory's companion Ken has moved in with us for three months. A while ago, he had mentioned that his lease was up in March, that he couldn't renew it because his building was doing some renovation, and that he was here for school until June. I asked him what he was going to do and he said he didn't know, he would have to find another apartment.

This caused my "opportunity light" to go on. I thought about the possibility of his moving in with us, discussed my idea with Gregory, and a few days later we presented our proposition to Ken. In exchange for a very little rent from him and more time available to be with Gregory, he could have our guest room and the guest bath as his own. We could also share meals when he was home and when I cooked.

The offer was made at two levels. One was altruistic because Ken was in need of something we could provide and we have come to like him a lot over the year that he has been Gregory's companion. Secondly it would provide me with what I have been calling, "The Nobel Experiment." How do I continue to provide for Gregory's needs as the demand increases and yet still maintain my sanity?

The idea of having someone live with us 24/7, the fact that the condo while comfortable is not huge, and with Gregory and I having to give up our guest/TV room, we had some hesitancies and concerns.  Even with Ken's being excited about the idea and his accepting our offer, I am sure he had concerns as well.

The idea was to see what having "live in help" would be like. Most likely this is the future if I want Gregory to be able to stay at home for as long as possible. As his medical and personal needs increase the person will have to be more health care oriented but that is not necessary at this point. Also, I am healthy and able to take care of Gregory's needs and while I expect to stay healthy, it is always good to plan for all possibilities.

The transition has been very smooth and most of our worries unfounded, Ken is comfortably ensconced in the guest room and besides his being supportive as a companion to Gregory and providing me a friend I can actually communicate with, he has been an excellent, respectful long term "guest.

It has been nice having someone around to let me get out to play, to run errands, have a life of my own so I can be in a better place and more emotionally available to Gregory. Most of the time Gregory and I are together but Ken's being around has given me more opportunities for myself. He has also given Gregory company when I am at my computer running the household or writing or taking a nap.

Ken has provided me with a companion in many ways as I have someone to talk to and share complex ideas which Gregory is no longer able to do. Ken can give me feedback and helps make me feel less alone.

Another thing Ken has provided is putting me in a place of "wiser adult" and almost a parent figure as he asks for my advice, as I sometimes offer it on my own, and he seems to value what I have to offer. I know Gregory needs me, but the interaction and communication with Ken meets those needs on a different level.

Also, Ken has on his own taken over house hold responsibilities like emptying the dish washer, taking out the garbage, picking up groceries, helping me with condo maintenance. He has begun to give Gregory his breakfast and goes swimming with him.

So the only problem with this "Nobel Experiment" is that both Gregory and I are enjoying it very much but it will end in June. Will enjoy it now ... and worry about loosing Ken when that comes.


Tuesday, January 10, 2012

Daily Word




Daily Word: Daily Inspiration From Unity
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Today's Daily Word
Tuesday, January 10, 2012
TRANSITION
I move forward through change.
While change is inevitable, my response or reaction to change is up to me. How can I best prepare myself for change, and how can I make the most of it?
Change is a transition from one thing, one place, one state of mind to another. I am evolving from what was to what is. I am becoming more than I was before. Just as my view changed as I transitioned from childhood to adulthood, I now see that I am gaining a new perspective during this transition.
I may be stepping into unfamiliar territory, but this step is an opportunity to grow in spiritual awareness. With each shift or change in my life, I am moving forward.
When I was a child, I spoke like a child, I thought like a child ...; when I became an adult, I put an end to childish ways.--1 Corinthians 13:11