FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!

PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.

Showing posts with label Magic. Show all posts
Showing posts with label Magic. Show all posts

Thursday, July 9, 2015

Piano Recital

This is amazing. Another MAGICAL MONUMENTAL MOMENT! I have been wanting to sit Gregory down in front of the grand piano in Liberman's Great Room but have been afraid to do so wondering if it would be traumatic for him. Today I decided to try.

I lifted his hands and fingers and placed them on the keys. I played the keys further up the keyboard with his fingers just sitting on the lower keys. Then I pushed his fingers to make music. He would take his hands off the keyboard and I would play a little then put his fingers back. We did this quite a few times.

He would posture his fingers as if the "muscle memory" was trying to take over. The positions he attempted with his hands and fingers were very similar to what I had seen many times as he was getting ready to play. Sometimes the fingers would just sit there after posturing and other times he would strike one key or a handful of them.

I do not do these things in the hope that he will re-gain abilities or skills. I do them as yet another way to provide him with daily meaningful activities and as a way of interacting with him using skills he used to love doing.

Our practice session lasted about 5 minutes. Then I recorded this 18 second piece. I facilitated, I recorded, but I was astounded when I watched what had been recorded. I had not realized until I watched this video, what he was able to accomplish in such a short period of time.

He hasn't "played piano" for at least 8 years! He didn't all of a sudden play Chopin like he used to but you could see his hands trying to get back some of that muscle memory and eventually he did compose this piece which I will call: "Gregory's Muscle Memory."

At the end of the piece, you can see Gregory's fingers "making silent love" to the keys and his final comment sums up for me how he felt about the experience.







Sunday, March 29, 2015

Hatikva

Today for Lieberman's Sunday entertainment, a very talented young pianist performed a variety of music including classical, jazz, ragtime, Klesmer, and more. One piece he played was the "Hatikvah" or Israeli national anthem.

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As he was playing, many people in the audience began singling along in undertones and under their breath. It was a sound that while magical, was not joyous. 

It seemed to carry the archetypal, universal sorrow and ache which the Jewish people have carried around through the centuries, and still seem to have as part of their cultural conscientiousness,  beginning with the King of Egypt enslaving the Jews through Hitler and the Holocaust through today with Anti-Semitism still wreaking havoc.

"Hatikvah" "Hatikva" (הַתִּקְוָהpronounced [hatikˈva], English: "The Hope") is the  national anthem of Israel. Its lyrics are adapted from a poem by Naftali Herz Imber, a Jewish poet from Złoczów, (today, Zolochiv, Ukraine). Imber wrote the first version of the poem in 1877. The romantic anthem's theme reflects the Jew's 2000-year-old hope of returning to the Land of Israel, restoring it, and reclaiming it as a sovereign nation.


Hebrew


Transliteration


English translation
כֹּל עוֹד בַּלֵּבָב פְּנִימָהKol ‘od balevav penimahAs long as in the heart, within,
נֶפֶשׁ יְהוּדִי הוֹמִיָּהNefesh yehudi homiyah,Jewish soul still yearns,
וּלְפַאֲתֵי מִזְרָח, קָדִימָה,Ul(e)fa’atei mizrach kadimah,And onward, towards the ends of the east,
עַיִן לְצִיּוֹן צוֹפִיָּה,‘Ayin letziyon tzofiyah;an eye still gazes toward Zion;
עוֹד לֹא אָבְדָה תִּקְוָתֵנוּ,‘Od lo avdah tikvateinu,Our hope is not yet lost,
הַתִּקְוָה בַּת שְׁנוֹת אַלְפַּיִםHatikvah bat sh(e)not ’alpayim,The hope of two thousand years,
לִהְיוֹת עַם חָפְשִׁי בְּאַרְצֵנוּ,Lihyot ‘am chofshi b(e)’artzeinu,To be a free nation in our land,
אֶרֶץ צִיּוֹן וִירוּשָׁלַיִם.’Eretz-Tziyon viy(e)rushalayim.The land of Zion and Jerusalem.

Thursday, March 24, 2011

Predictibablity

The green plants are always there,
Sitting on the bedroom bookcase top,
With several other items of interest.

Nothing needs be done,
No decisions made,
It always remains the same.

The living room window sill,
Sports in a row - Buddha, Ganesh,
An African Protection Fetish.


Nothing needs be done.
No decisions made.
It always remains the same.

Each night at bedtime they are tapped lovingly,
One by one in his concentrated way,
Counting on at least one predictable, familiar experience.

Thursday, January 20, 2011

Magic Wands

When asked how I would use my magic wand (Harry Potter Style) for Gregory and me I came up with the following. I do believe in magic but a wand will not really solve our problem unless we do the obvious: wave the wand and remove Dementia and all of its forms. Then while we are waving, lets get rid of all illness for everyone. Then create a world in which people could love rather than hate, help rather than harm, be truthful and loving. At least one more wave so no one has to be hungry, or thirsty, or in pain.  Wave a little more and let death be a natural way of moving on, not one of illness or violence, and make sure that the departure is not long lived (so to speak) and long suffered.

What I noticed in hearing others talk about their dealing with Alzheimer's is the huge amount of sorrow, loss, and frustration over things we cannot control. If I could better deal with those things I cannot control and feel better about those things I can control, I think I would be a better caregiver. So there, Wave ... Wave ... Wave.

Sunday, January 2, 2011

Believe

On this last day of the Christmas/New Year's holiday, I want to share these lyrics with you. This is what Christmas is for Gregory and me. Even though we have been through a lot, we are blessed and we celebrate the magic that is our relationship, a relationship which will always be magic no matter what comes to pass. Christmas always helps remind us of what is important ... so we can keep going for another year.
Sending you my love,
Michael


BELIEVE
Josh Groban


Children, sleeping.
Snow is softly falling.
Dreams are calling, 
Like bells in the distance.
We were dreamers,
Not so long ago.
But one by one, we
All had to grow up.

When it seems the magic slipped away... 
We find it all again on Christmas Day.

Believe in what your heart is saying, 
Hear the melody that's playing.
There's no time to waste, 
There so much to celebrate.
Believe in what you feel inside,
Give your dreams the wings to fly.
You have everything you need, if you just believe.

Trains move quickly
To their journey's end.
Destinations...
Are where we begin again.
Ships go sailing,
Far across the sea.
Trusting starlight, 
To get where they need to be.

When it seems that we have lost our way...
We find ourselves again on Christmas Day.

Believe in what your heart is saying, 
Hear the melody that's playing
There's no time to waste, 
There so much to celebrate.
Believe in what you feel inside,
And give your dreams the wings to fly.
You have everything you need, if you just Believe.

If you just believe.
If you just believe.
If you just believe...just believe...just believe.