Aging vs Dementia vs Life

Periodically I post comments on my friend Kate in Australia's blog and then post them here as well. I do this because I find that I have shared something that might be important to share with you as well.

Kate, Kate, Kate,

Not easy. Your post's ending shows you still have your sense of humor. Very important to keep that:-) 

I personally believe, based on my observations of Gregory and on my own aging brain and memory (although I do not believe that I am experiencing Dementia but did notice more forgetting begin since I was 40 - thirty years ago,) that when I fight the loss of memory, fight the inability to recall pieces of information, am under a lot of stress, or am tired ... it gets worse. When I relax and release it, I have an easier time. So differentiating between your public self and the ability to relax at home is good.

Since both Gregory and I were 40, we invented what we called, "The Noun Disease." When we had trouble recalling a proper noun or someone's name we just announced "NOUN" and keep on with the sentence. Sometimes it would come later, sometimes the other person would substitute the noun, and sometimes it didn't matter.

In many ways there is so much of my past that I do not (or have chosen not to) remember. For the most part that doesn't matter. I am not trying to compare myself to you but in some ways there are similarities to "getting older" and "having dementia." We both know which one we would choose if we could.

Hang in there (as I picture that famous poster of the cat hanging from the window sill by its toenails!)

Panchamaya Kosha Session One

I will post this just as a reminder. The writing I will be doing about my Yoga experiences, and the regaining of my Personal Self as distinguished from my Alzheimer's Self will now take place at http://mhorvich.blogspot.com

Here, in case you want to follow is the first session write up. Future ones will be at the new location.

Thanks and Namaste,
Michael

After discussing the model and its levels we began our Yoga session. Corinne demonstrated the various stretching and activities in "floor position" and in "chair position." Most of the ones I did were on a chair as I am so out of shape, recently had a bad case of Vertigo, and my back and hips have been bothering me. (This is not a poor me but information by way of your understanding the session.)

As the stretches and exercises progressed I found myself becoming more and more limber and finally ended up moving to floor style. I do not think that I have been as aware of my body in a long time (if ever) then when we were going through the stretches/exercises in this mindful way.

After the stretches/exercises we did a brief Yoga Nidra meditation mainly doing a "body scan" where Corinne led us through a mindful look at our bod, from the top of our head to the tips of our toes, in relation to breathing, the "inside" of it and the "outside" of it.

When I first started meditation classes I would say that many people think Yoga is physical stretching and exercising when it is really a way to calm and quiet the body so as to be better able to meditate.

While that is still true, I am afraid that I discounted Yoga too much. In this one short session, I became so aware of my body and its relation to the space around and the space inside that I now understand better the relationship between the physical and how it supports the mindful meditation.

I have continued to become more aware of how breathing relates to meditation, my study of Buddhism, and my emotions and sure enough here it shows up again in Yoga. I am excited about these sessions and look forward to the next ones to see what they will bring.

I might mention here that I have known for a while that I am very physically out of shape and needed to do something about it. The message hit home when I took myself to the emergency room with the Vertigo attack. It scared me. I thought my blood pressure had gone sky high (when it really was only registering the distress of my body with the Vertigo.) But the scare was enough for me to decide that thinking about doing something does NOT count as DOING something.

I surprised me with my quick actions: 1) Began discussing weight loss and made goals with my Psychologist, 2) Renewed my membership at LA Fitness, 3) Committed to a year of personal training at LA Fitness, 4) Began my weight loss program by weighing in and beginning a log of everything that I ate, 5) Beginning a six week Yoga Kosha session with Corinne.

I am airing my laundry here because by talking about it and by processing it, I think I will be able to try harder to succeed with this program of regaining my health. I DO NOT WANT TO BE OR FUNCTION LIKE AN OLD MAN, EVEN THOUGH I AM AN OLD MAN!

Also, as a reminder, this is being posted on my writers BLOG because I need to move on and separate my Alzheimer's Life from my Personal Life. No less love for Gregory but he is now safely ensconced and embraced. I need to do the same for myself.

A Letter To A Friend

S,

I appreciate your comments. I have never entertained the possibility that we get fewer invites. We always enjoy seeing you and being with you (and your and M's making it easier to see B.) As we discussed gearing down G's yearly birthday July 4th party, I certainly understand "little time and less money and energy." 

Our life has become more narrow. We do enjoy our opera, legitimate theater, musicals, NETFLIX, and the movies. I enjoy cooking and experimenting in the kitchen. Having people in now and then is still fun but getting harder. Being with people becomes a little more difficult partly because of Gregory, partly because of the extra energy I have to spend to monitor and provide for G, tell my stories and his, etc.

I am definitely feeling a little older and a little more tired but not to the point that I am "in trouble." Also, when he has had a difficult day and/or I am feeling down it is hard to be with people and keep up the positive front and the running commentary. Being home and alone and quiet works well. We depend on listening to music a lot to disguise the fact that we no longer can have two sided conversations but also because we enjoy the music. It has a calming effect on both of us.

Current changes, for which I am still trying to figure out how to compensate, is his not knowing how a book works, so no bed time reading; increased difficulty dealing with too many items on his dinner plate; perseveration in some minor annoying behaviors; continued loss of even more common word associations;  needing more of my attention as his "Bowel Coach." I'll not go into detail about the later.

Yesterday I fixed G his five o'clock coffee and cookies, placing both on the counter and showing him. He took the cookies to his desk, ate them. Later when I was preparing dinner I saw that he left the coffee behind on the counter, not even realizing there was no coffee with his coffee and cookies. 

Your offer to "be there" and in effect your "being there" is generous and gracious and in itself makes my life nicer/easier. Right now that is about all you can do and should consider it well received. 

I do like the idea of Gregory and I picking you up and driving downtown to a hot dog and movie show with B. The new companion should make it easier so I can get away and have some time to myself and allow me to run errands without having to bring Gregory along all the time. 

Soon. Love to M.

m

An E-Mail to C and M, Our Niece and Nephew

C & M

How about a visit Wed August 7 through Sunday August 11? We have theater tickets the next weekend.Want to spend longer so G and I could enjoy the area, spend more time with R & L, and more being with M & D. Of course we can never get enough time with you guys but understand that you'll be working during the week. No expectations for your being available during the week.

Interesting comment on thinking about what is still to come. Do you have any idea of what you might be looking for? You certainly are a success in your personhood, your real estate career, your love relationship, etc But I guess that you are still young enough to aspire to more, bigger, better, different, etc. 

For me, I feel that I can relax on that account because I have achieved much and have what I want (given G's Alzheimer's.) I do not find the need to prove myself or to "earn my keep" in society. Been there done that. While Michael's Museum was great and continues to be a wonderful legacy I am happy it is over. I also recently quit Ragdale because my efforts and volunteerism there began to feel like a job. Feels good to say goodbye to them while I hold on to the fond memories of my residency in 2010.

One continuing desire is to be a published author. Not self-publicaiton but bigger. So I guess I think about that but not obsessively and many not strongly enough to really get it done. 

I have begun my first attempt at writing fiction. Based on my real psychic past life regression experience which I think we have talked about. I am researching the time period of each "life" and trying to flesh out a chapter for each person I have been based on the regressions: Carny, Nun, Farm Wife, Rural Child, and Renaissance Baker. 

Travel might be a possibility but only will happen if I can do it by myself, with G being taken care of, and while OK it is a little lonely to do so without him. P has said it would be fun to travel together. She spent a long weekend with G and I in Mexico and I think we would get along as travel partners. 

But for the most part I am content to be at home with Gregory. I can fantasize about big trips to Europe or Japan etc but don't really believe that I have it in me, even with help. Maybe when the ship comes in and we can take R or P along all expenses paid it would make it easier, or with you and M. Fun to think about.

I would like to have more avenues to express my creativity but that seems back door to getting through each day. Sometimes I think that I can NEVER be creative ENOUGH! 

I find that Gregory and my world continues to narrow and we pull in but that is probably a combination of old age and his illness. We keep busy, see friends, entertain, are entertained, enjoy the movies on DVD and our theater and opera adventures. I do not feel the need to accomplish anything great or volunteer and give give give anymore.

G's birthday party was best attended ever with close to 50 people attending. All had a good time. But I find myself saying I need to cut back, after all planning, executing, and cleaning up after a party like that for a man who is almost 70 years old takes its toll. I am not crying "old man" but am getting older, aren't I? Next year fully catered or just having people in for fireworks, cake, and birthday wishes.

Agreed good and bad are one and both part of being alive. One must take the one with the other.

Regarding your question, we are doing fine. I am feeling a little constricted since we have no companion and I had gotten used to have some freedom and alone time. I expect more students will respond to our notice when they begin returning to campus.

Meanwhile I have enlisted R and J to be with Greg for three times so I can investigate Memory Care Facilities in the area. We are far from that need with many options available but I want to know what is available and get a sense for how it might make me feel to think about having to place Gregory if and when it comes to that.

As far as sad, I am sad but that is part of the "life of good and bad" we spoke of. Some days seem slow and dull and others are more fun. But sadness seems to ride on my shoulders as part of who we are today. If I can get through a day evenly without not to many "confusions" with Gregory, I am content.

As far as Gregory's sad, I think he is just getting more and more tired, a little more withdrawn, and more settled into being "less." But he is happy, appreciative, enjoys his food and TV etc.

All for now.

Love you both lots.

m

Things For Which to be Grateful.

The other day I was analyzing my life. No, not on paper but in a few minutes of day dreaming. When I arrived back, I realized that my life was pretty predictable and I liked it that way. I know that things can always change on a moment's notice but at least for today, and probably tomorrow, my life is predictable.

For example, I no longer worry about career path. I am what I am and while I still have ambitions, I do not worry about my next job, my next college degree, my next obligation to the world. I only have to worry about my next obligation to myself and to those I love.

I do not have to worry about a growing family, about sending my kids to college, about having my kids move back into the house, about buying and furnishing a new house. I do not have to think about moving, about which city I want to live in, about needing a new car.

I have a wonderful family of relatives and a wonderful family of friends. Sometimes it is difficult to keep in touch with all of our friends let alone worry about finding new ones. For the most part my friends have been friends for ten, twenty, thirty years. By now we all know each other pretty well, accept each other for who we are, and do not stand on pretenses or assumptions.

I can choose from any number of favorite restaurants at which to eat, grocery stores at which to shop, cinemas at which to watch movies, museums to attend, operas musicals and plays to see, paths in the neighborhood on which to walk.

Having reached a certain age I do not have to do things I do not want to do or go places I do not want to go. Since the aging process is a slow one, very often by the time an ability is gone I find that I do not miss it.

Even my life with Gregory has become predictable. Whenever I think he is, he isn't. Whenever I think he knows, he doesn't. When things are supposed to be in place, they usually aren't. When tasks are reportedly accomplished most likely they are not. When conversations are initiated by him, they do not reach completion. When memories are searched they remain hidden. Associations are not associated and connections are not connected.

I have learned to live this way and even on our journey with Alzheimer's, I am strangely content.