FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!

PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.

Showing posts with label Normal. Show all posts
Showing posts with label Normal. Show all posts

Monday, May 27, 2013

Balancing Emotions

The article "Balancing Emotions," reproduced below, helped me gain yet another insight into why I react to difficult interactions with Gregory in ways with which I am not happy and which I am trying to change.  

For this post, I want to concentrate on this particular part of the article: 

Emotions and inner patterns of behavior arise like waves of energy within us. They take the form of feelings and reactions that play out over and over again. These patterns are very habitual: a trigger comes and the pattern arises. Sometimes, we do not even need the trigger; the pattern is just there.

After 35+ years of life and love with Gregory, we have many shared experiences and have learned many patterns of interaction. Now, ten years into our Journey with Alzheimer's Disease, many or most of those old patterns of interaction have changed or disappeared. We have compensated, revised, tweaked, changed, dropped, and added to our repertoire.

Often our interactions are based on Gregory's current normal (which is somewhat crazy) but to keep our life as normal as possible, I also try to interact with Gregory like I always have. When an interaction goes awry I still react as if Gregory is normal, as if the interaction should have been normal, as if our relationship still is normal. However, he is not and they are not. So I get angry, impatient, frustrated, and at times disrespectful.

The old patterns arise like waves of energy and are habitual, but because the old normal is mismatched with the new normal, the energy is often negative. Angry energy. Disrespectful energy. Impatient energy. Frustrated energy. Confused energy. 

Even though I have worked at changing many of our patterns, many more of the old ones still surface without needing a trigger. In looking at myself over the last ten years, what I have had to do is relearn and analyze my patterns of behavior and make sure they mesh with the "New Normal" that Gregory and I are living now. 

Sometimes I am able, other times I am not. Part of the problem is that the "New Normal" will be new yet again later tonight, tomorrow, and the next day etc etc etc. I'll keep trying.

Balancing Emotions 
From: tricycle: The Buddhist Review, Spring 2013.
A discussion by Lawrence Levy, founder and senior member of the Juniper School, based on a workshop by and the teachings of Segyu Rinpoche.
Long devoted to translating traditional Buddhist teachings into contemporary idiom, the Silicon Valley–based Juniper School, led by Segyu Rinpoche, has in the past few years reached out to the general public with its accessible teachings. Here, a senior member of the school describes the practice of Balancing Emotions, one of the “four building blocks of Buddhist training” (the other three practices are Meditation, Cultivating Compassion, and Developing Insight). In March, Segyu Rinpoche, a Brazilian-born lineage holder in the Tibetan Gelug tradition, will offer a four-part video retreat on all four practices at tricycle.com.
Balancing Emotions means gaining control over the mood and outlook we bring to everything we do. Our inner emotions have an enormous effect on our experience, often impeding our inner growth. Balancing our emotional energy can create a significant shift in our inner well-being, creating new levels of inner strength and tranquility.
—The Juniper School
One of the great insights of Buddhist thought is the central role of emotions and inner patterns of behavior in our experience. Strong cravings and emotional patterns color almost everything we do, sometimes keeping our minds disturbed for long periods and often upsetting our personal and professional lives. Although our emotions are normal aspects of experience, they can become like mental prisons. A single word, or even a look, from another person can trigger a range of emotions that consume us for hours, weeks, or longer. These inner states typically are present regardless of our outer endeavors and attainments, and they can be highly resistant to change. Wealth, fame, and other worldly successes, for example, often fail to provide the contentment we anticipated because they do little to change the emotions and patterns of behavior that govern how we feel.
Emotions and inner patterns of behavior arise like waves of energy within us. They take the form of feelings and reactions that play out over and over again. These patterns are very habitual: a trigger comes and the pattern arises. Sometimes, we do not even need the trigger; the pattern is just there. This emotional energy incites us to action, driving our mood, experience, and interactions with others. It can make us do things we do not want to do, leaving us to rationalize our behavior or to regret our actions. When our emotional energy rises, it is difficult to dissipate it at will. It needs to run its course. Consider, for example, how anger, envy, resentment, lust, and other emotions can dominate our mood and attention. Buddhist training gives us tools to bring these waves of emotional energy into balance.
To gain this balance, first we have to commit to learning about ourselves and growing. This is often not as easy as it sounds. For example, we have a strong tendency to blame problems on outer conditions—the boss, the neighbor, the friend, the economy, the family, the environment, and the like. We tend to convince ourselves that if outer circumstances were to change—if we had more money, more fun, more friends, more free time, more respect, better relationships, and so on—things would be better. However, although outer changes may help, we often give them too much weight, and we have difficulty seeing the obstacles created by the inner forces at work.
Once we acknowledge the importance of looking within ourselves, we have to elevate our awareness of how our emotions and patterns of behavior affect us. We begin to see the impact on our lives of our emotions, our inner patterns of behavior, and the inner stories that dictate how we see ourselves and the world around us. Becoming aware of these inner forces is key to changing them. Just the awareness can make a difference.
Having enhanced our awareness of our emotions and patterns of behavior, we can apply remedies that will reduce or eliminate those that cause inner agitation. These remedies include committing to a path of inner development, meditating, exercising self-restraint, and cultivating positive modes of thought and action. Buddhist training guides how to do each of these.
However, we must be careful not to suppress or bury our emotions; then the energy just finds its way somewhere else. Instead, by gently robbing negative emotional patterns of their power and by practicing positive modes of thought and action, we bring balance to our inner lives, and our minds will gradually become habituated to remaining calm, stable, and clear. 

Wednesday, September 12, 2012

The Case of the Missing Strawberry Shortcake


I am sure that some of this has to do with my own disappointment. I continue to tell myself, "Don't take it personally." But I take it personally. I can only imagine how he must have felt but for me I tried to do something nice for him and it only caused more problems. I keep trying.

The other day I planned to make us a nighttime treat. After dinner I made a batch of baking powder biscuits. Then I plucked and sliced the strawberries, sugared and lightly watered them to bring out their juices, and gave them a partial mash. Finally, everything was set aside for later.

After dinner we watched some TV then went into the kitchen together to assemble our dessert. G sat on the stool and watched as I sliced the biscuits and placed them on a plate, topped them with strawberries, and loaded the creation with lots of whipped cream. Kiddingly, Gregory used to say, "The only reason for shortcake is to be able to have lots of whipped cream."

I picked up my plate, pushed the other plate towards him saying, "Bring yours," and headed back to the TV room. A few minutes later (actually a few to many minutes later) Gregory arrived with the baggie of extra biscuits that had been set aside for breakfast.

"I am confused, aren't these too many?"

"Those are for tomorrow. Your strawberry shortcake is on the counter in the kitchen," I said amazed at where a short circuit of his brain had taken him. He had watched me assemble, he saw me pick up my plate, he had heard me say "Bring yours" as I pushed it towards him, but none-the-less he showed up carrying a baggie of leftover biscuits announcing he was confused.

At times like this my brain goes numb with disbelief as I struggle to interpret what had happened, remain calm, figure out the next step, still trying not to just do it for him. Maybe I should be grateful that he knew he was confused. Sometimes he doesn't realize he is confused and behaves as if he knows what he is doing.

So he went back to the kitchen to look for his strawberry shortcake and was gone again for quite a while. Waiting is difficult for me but I still believe that it is important to allow him time to solve his own problem. Sometimes he is able to do so.

Finally I got up and went to see how he was doing. I found him looking around the kitchen not knowing what to do. By then he had probably forgotten where his strawberry shortcake was, the kitchen in his mind must be a HUGE COMPLICATED place, and maybe he had even forgotten why he was standing there.

I pointed out his plate and he said something like, "Oh that was easy." 

For him, maybe. For me, devastating.

I know, I know. You are probably thinking why didn't I wait until I was sure he picked up his plate? Why didn't I just bring his into the TV room as well? Why didn't I just go back and get his for him? Why didn't I just do all this calmly without taking it personally, letting it diminish my good intentions, causing my mind to go numb, bringing a few tears  of despair closer to the surface? That's easy for you to say.

At least this time I stayed calm and didn't get angry or say something like, "How could you not know what to do?" or worse. At times like this I have to balance back and forth between perceiving and treating him like he is normal and behaving and treating him according to his "current normal." Or figuring out in the field what to do next when what usually worked didn't work this time.

Not an easy job. I do get better at it. But my guess is that Gregory's decline will constantly my outpace improvement. The question is will I survive to outpace his Alzheimer's? Bon appetite!


Wednesday, May 2, 2012

Back to Normal

Slowly Gregory is getting back to normal, whatever that means. His cold/cough is much better and many of his usual routines have returned. He made his own breakfast this morning and that pleased me. He has been joking around (mostly his sense of humor doesn't work) but he has actually been funny. He "assisted" me as I had my first attempt at baking bread with our new Cuisinart Stand Mixer. The first adventure is a braided raising Challah (egg bread.) I think I need to purchase a "Bread 101" book. Attached is a picture of the results: