FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!

PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.

Showing posts with label Remembering. Show all posts
Showing posts with label Remembering. Show all posts

Friday, May 22, 2015

Visiting Gregory

When people visit Gregory for the first time they wonder if he will know who they are. My reply is "YES!" He may not know your name and he may not know how he knows you but he will know that he feels a special love for you and that you feel a special love for him.

Recently, a friend when asked if he wanted to visit Gregory with me after going out to breakfast replied, "I don't think so because last time I saw him he didn't know me. He kept looking away."

I think my reply was something like, "Maybe he was just distracted because you visited him on a day when a lot was going on around him." So we scheduled a visit.

In thinking about our upcoming visit I was wondering, "What if Gregory doesn't recognize him? What should my response be? Is that a good reason for a friend to no longer visit Gregory?"

Then I was reminded of a quote I read a long time ago about an old man who was asked why he got up early every morning and rode on a bus for an hour to go to the old people's home to visit his wife when she no longer knew who he was. His reply was simple but powerful, "She may not know who I am, but I know who she is!"

Unless a person with dementia is fully catatonic (and maybe even then) they enjoy visitors. They enjoy seeing someone who smiles at them, holds their hand, talks to them, strokes their head, gives them kisses. These are things everyone enjoys and in the narrow world of a memory care facility, perhaps they are enjoyed even more!

So I would hope that friends and family will continue visiting Gregory, when I go with them or if they go by themselves and whether he recognizes them or not, to help make his life a little bit more enjoyable and to make sure he knows that he is loved. Gregory may not know them but they know Gregory, and that matters.


Wednesday, March 18, 2015

An Anthem for Alzheimer's

Captures the feelings of Alzheimer's as perceived by the people left behind. Sometimes I wish I knew what Gregory really was thinking but other times I am grateful that I don't! For the most part he seems happy, content, calm and I do my part to keep let this continue and to keep him warm, fed, and safe!

https://www.youtube.com/watch?v=wv1bf7S2XV0

Chris Mann - Remember Me

LYRICS:
Remember Me: written by Chris Mann, Laura Mann, Rudy Tanzi, Willy Beaman, Dora Kovacs

I need someone to hold, to hold on for me
To what i can’t seem to hold on to
The life we used to live, is slipping through my fingertips
Like a thread that’s unraveling

I suppose that nothing lasts forever, and everything is lost in its time.

When I can’t find the words that I trying to speak
When I don’t know the face in the mirror I see
When I feel I’m forgotten and lost in this world
Won’t you please remember me
Remember me

I know there'll come a day, when i have gone away
And the memory of me will fade
But darling think of me, and who I use to be
And I'll be right there with you again

I hope I’m one thing worth not forgetting
Tell me that you’ll never let me go

When I can’t find the words that I trying to speak
When I don’t know the face in the mirror I see
When I feel I’m forgotten and lost in this world
Won’t you please remember me
Remember me

I hope I’m one thing worth not forgetting
Tell me that you’ll never let me go

When I can’t find the words that I trying to speak
When I don’t know the face in the mirror I see
When I feel like I’m lost and alone in this world
Won’t you please remember me
Remember me

-------
Remember Me is available for download on iTunes, Google Play and Amazon. You can also view the video for Remember Me over on my Facebook Page or YouTube Channel.

Thursday, October 18, 2012

Roomates

This article was recently published by our friend John Schimmel in a new magazine written by and about GLBQ people and their family and friends. John has been a long time friend of Gregory's since college days.

IN APPRECIATION OF MY COLLEGE ROOMMATE
By
John Schimmel

This is the story of my own coming out. I am not gay – I don’t mean that kind of coming out. My coming out was from a place of myopia.
Freshman year of college I pledged a fraternity. It housed the Adelphic Literary Society. The eating club cook was an enormous, Czech psychic. Kegs were tapped at parties but the intoxicant of choice was acid. The sport of choice was Frisbee. It was not your everyday fraternity and I immediately regretted my choice.  In the long run it turned out to be the perfect place for me, which is probably all I need to say about myself.
The fraternity house had a huge music room with an ancient piano that had to be sent out to be refurbished shortly after I joined. When it was returned it sat for a time in the entry hall before being rolled back to its home. I was upstairs one day and heard music wafting up through the stairwell. I went downstairs to find a tall, skinny, pale sophomore we’ll call George playing Eric Satie’s “Gymnopedie.” Not  just playing it. Breathing exquisite life through his fingers into the music. What happened next was the heterosexual equivalent of love at first sight.
Eventually, George asked if I wanted to share a two bedroom suite in the frat house the following year. I did. I went away for the summer. I came back ready to move in – and discovered that  George had gotten there before me and decorated the suite. Zebra striped curtains hung in the huge bay windows.
I was furious. I told anyone who would listen that the place looked like a gay brothel.  I refused to move in for weeks – I can’t remember where I slept but I wanted nothing to do with the image George was projecting for us.
I eventually relented and unpacked. George was incredibly forgiving. As things thawed we wound up spending hours and hours talking late into the night. George shared his passion for architecture with me. He had not officially come out yet but he confessed his discomfort about a crush he had on two very beautiful fellow students – this was an all-men’s school at that time. He helped me deal with a crush another man developed on me, a man I loved as a friend and did not want to wound.
The following year, I joined George and two other friends renting a local beach house. It was right on the Long Island Sound, affordable only because it was off-season. We cooked feasts, walked the beach, watched snow collect on the frozen tide and undulate as the current moved beneath. All activity halted for sunset.
The following year we rented it again, minus George because he’d graduated. He’d started dating a fascinating woman by then. Toward the end of my senior year he arrived at the house, handed me a guest list, said he wanted to get married on the beach, and left me to plan his wedding. It turned out to be a glorious, quasi-hippy affair. The morning after the wedding I found George in bed with his new bride and one of the beautiful boys he’d had a crush on. But he’d still not declared his sexual preference.
I can’t recall how long the marriage lasted. I remember visiting George and his wife in Boston and going with another couple for a spectacular twelve course Italian meal in a room that held only the six of us behind the kitchen in an out-of-the-way restaurant. I remember being drunk enough to later argue with George’s wife about her desire to have a kitchen with identical unmarked mason jars for all the spices.  Why would she not label the jars? What was the point?
At some point I learned George was divorcing his wife. He’d met a man and fallen in love.  The lover was George’s opposite in every way – short to George’s tall, flamboyant to George’s reserved. George liked to live without clutter; his lover was a collector of tiny things – tiny houses, tiny furniture, tiny dice, tiny playing cards, all neatly curated in display cases. They eventually moved into a wonderful old house by the railroad tracks in Evanston, Illinois. The kitchen was filled with un-labeled Mason jars filled with spices and teas.
When I decided to marry the beautiful and brilliant Chicago native I’d been dating I sent George and Mark our guest list and told Greg it was his turn.  The two of them found the location, caterer, florist, photographer. The day of the wedding, which as to be outdoors, it rained so hard there were ducks swimming on the lawn. But George and his lover clearly had some sort of magical power because it cleared up for exactly the amount of time we needed. The storm broke again as the last of the bartender’s equipment was loaded into his truck.
During one of the moments when it was legal George and his lover eventually married. Mark retired from teaching and helped George run his architecture firm. They had what seemed like an idyllic life. But now, after forty years together, George has developed early onset Alzheimer’s. My brilliant roommate is not always home now, though there are flashes of his old self. But he pretty much requires constant care. 
George and  Mark have had to shut down the architecture firm. They sold George’s piano, a family heirloom, because he could no longer play. They sold their house where my wife and three kids used to visit at Thanksgiving.  Mark donated his collections to  a children’s museum. The museum has built a special gallery that he curates, but he has largely dedicated himself to taking care of George. He gently helps George finish sentences. He sends out email notices of George’s accomplishments and status and writes beautifully about the disease about which he has had to learn so much. He could not be more loving or supportive or present for my friend whose homosexuality I once scorned and feared. My appreciation for what he is doing and my respect for his courage under heartbreaking circumstances bring tears to my eyes. I defy anyone to find a couple more dedicated to one another.
In college, George and I took the same English class once from an eccentric lecturer who, on the first day of class, told us the topic for our final paper. He gave us the date and even the hour it would be due. He said he would never mention it again but that at the appointed hour “the train will leave the station.” Translation: He would flunk anyone who tried to deliver late. As the date approached, George bought a small suitcase, affixed a railroad baggage tag to it, and put in it his final paper together with an album the professor was to listen to while he read the paper. Needless to say, George aced the paper.
I am embarrassed by how many years it took me to understand that the zebra stripes were hung in the same spirit. George wanted to tweak my straight-guy-from-Beverly-Hills view of life.  I tell George and his husband, when we talk, that I love them. The ability to say that to two men is one of George’s gifts to me. But I forgot to thank him, when he still had a fully-functioning memory, for letting me move into the suite he’d decorated with such profoundly, wonderfully funny bad taste after my spectacularly immature hissy fit.  I can send this piece to him, though. That’s the joy and danger of putting something in writing: It’s always there as a reminder.

Friday, August 10, 2012

This Morning Reprise

SO FAR THIS MORNING

Up at 9:00 after a good night sleep.

Gregory shaved and remembered to put on moisturizer afterwards.


Began dressing, underwear on correctly.


Night clothes put away in correct drawer.

Instead of "sweats" followed through on prompt to get fully dressed.


After prompt remembered that we are going to meet a friend for an early lunch.

Was able to select a pair of dress jeans and a "nice" shirt on his own.

Asked which shoes he should wear and followed through.

In kitchen, took pills remembering to bring his water glass from bedroom.

Instead of a full breakfast, per prompt, had a muffin with butter which was left for him on the counter.

Asked if the door alarm was off so he could get the newspaper.


Read newspaper until time to leave.

Remembered to get a light jacket based on earlier conversation of cooler temperature outside.

One day off, one day on!

Saturday, April 7, 2012

Flowers and Lucidity

Yesterday we went to Room and Board. As we walked through the parking lot we commented on the splash of spring flowers. I was able to name the "Daffodils" but couldn't remember the name of the other flower that looks almost the same but has more than one flower head per stem. I tried but couldn't come up with its name. All of my thinking was verbalized out loud, which I often do, for the benefit of carrying on a conversation for the both of us.

"Jonquils" snapped Gregory. Proud of himself.

Friday, February 11, 2011

Remembering the Forgetting

Sometimes forgetting is good. Like this morning when Gregory asked me, "It needs to be fixed?"

I didn't remember that last night the TV and Cable Box were not communicating. He stood by my computer as I stopped working to listen while he tried to compose his thoughts.

I finally asked, "Can you show me?"

He said, "Yes" and I followed him into the TV room where he stood trying to remember what he wanted to tell me about.

Then I remembered the TV and all was well. "The TV?"

"Yes," he glowed!

I thanked him for reminding me and he felt good. All was well ... including my smiling loving face and my breaking heart.