FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!
PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.
Tuesday, April 26, 2011
I commented, "What a lot of rain we have had so far this Spring."
Gregory replied, "Yes. That's probably why I am feeling so EARIE."
The sky was very interesting with heavy dark clouds as well as white billowy clouds and spots of sunshine.
Gregory commented, "Look at those dark clouds, they are so BLUNDERY."
I kind of knew what he meant. In trying to "live in his world," I replied, "Uh huh."
Monday, April 25, 2011
Thursday, April 21, 2011
Wednesday, April 20, 2011
Hi. The good news is that death rates for many major diseases - HIV, stroke, heart disease, prostate cancer, and breast cancer - are declining. Sadly, we can't yet say the same about Alzheimer's. This year, the first of the Boomer Generation turns 65. To bring urgently-needed attention to the risk facing the Boomers, Alzheimer's Association recently released a groundbreaking study Generation Alzheimer's: The Defining Disease of the Baby Boomers.
We'd love your help in getting the word out on Michael A. Horvich Cares About People Who Care About Alzheimer's Disease about the important information in Generation Alzheimer's, so we can make sure the public understands what can be done to conquer this devastating disease. I've put together a microsite, making it really easy to grab banners, video, text -- anything you think you can use -- so we can make sure as many people as possible have access to this information:
Thank you so much,
Monday, April 18, 2011
Yes Lynn, I agree that one always needs to keep an eye on "Grace." However, sometimes the problem is not a question of "getting things accomplished" but rather "getting through the craziness that is Alzheimer's."
Metaphorically, the person with Alzheimer's is not "running on all cylinders" so they don't notice how they are running. The caregiver is running on all cylinders and sometimes therefore, the emotions kick in before the intellect. This causes interactions in which love, respect, kindness, patience, understanding, etc suffer.
Then Grace takes the form of apology. I believe the key, as you say Lynn, is "SOME LEVEL" of grace. One cannot always be perfect, even though we try : •)
Sunday, April 17, 2011
Monday, April 11, 2011
I lost it and began a fit of giggling, he joined in. "I know, I know," he said, "that's just my version."
When I regained my control, I was able to say, "Yes, a combination of steady and stable equals stattle."
How am I able to figure these things out?
Sunday, April 3, 2011
Today's talk centered around a number of events that took place this weekend. He was having trouble with doing something. I had to step in to help and this made him a little angry and short with me.
In a previous BLOG we came to the conclusion that: "...my helping him has become a choice between hurting his feeling less or hurting his feelings more. "
This time we came came to the conclusion that sometimes it seems like our choice is his being frustrated when he cannot do something or his frustration when I have step in to help. Either way ... FRUSTRATION.
Luckily (others would say Thank God) the frustration and anger is short lived and we just get on with living our life the best we can. He will usually end with, "I love you very much." I will reply, "That was never in question! I love you too."
Saturday, April 2, 2011
The third I could relate to. The woman was saying that she was better able to have a good day with her mother when she herself was well rested, had a chance to exercise, and didn't feel rushed. I could relate to that. Then she quoted a friend of hers and I could really relate to the quote: "You do not have to care graciously, you just have to care." She responded saying, "I am not always gracious, but I do care!" I could identify with that.
My final comments to the drug company is that very few pictures and/or advertisements talking about dementia did they show married couples, usually it is a child taking care of a parent. And NEVER did I see a situation in which same sex partners were involved in this Alzheimer's journey.
Alzhemer's does not discriminate, it affects all people equally.