Periodically I will add posts here if the sources provide additioanl informaiton on how to think about and deal with Dementia/ Alzheimer's Disease.


SCROLL DOWN FOR TEXT and BIBLIOGRAPHY from DAI WEBINAR 2/22-23/2017. You can also find this information on my website:

Even though this blog is now dormant (see info below) there are many useful, insightful posts. Scroll back from the end or forward from the beginning. My guess is that you could spend a lot of time here and maybe learn or experience a thing or two about living with and loving someone with Dementia/Alzheimer's or maybe come away with the feeling that "you are not alone" in YOUR work with the same!

• • • • •


Happy New Year 2016. With a new year comes new beginnings and sometimes endings. If I am personally progressing and if I am doing a good job in my grieving Gregory's death; if I have been able to learn my lessons in living and loving someone diagnosed with Dementia/ Alzheimer's; if I am to get on with my life ... I need to bring this Alzheimer's blog to an end since my writing has been dealing less with Dementia/ Alzheimer's and more with life after Dementia/ Alzheimer's.

Of course, I will always continue to work for and support fair treatment on behalf of people with Dementia/ Alzheimer's and may post here from time to time. Also, there are many wonderful posts here through which you may browse.

With this change, I will continue and reinvigorate my "michael a. horvich writes" blog which deals with grieving Gregory's death, life lessons, personal experiences, observations, memoirs, dreams, and humor in essay and poetry, as well as an attempt now and then at sharing a piece of fiction.

Please follow me there by clicking or click the link located on the right side of this page.

Finally, COMMENTS are always important to me and you can still comment on the posts on this blog! CLICK "Comments" and sign in or use "Anonymous." Leave your name or initials if you wish so I'll know it's you? Check the "Notify Me" box to see my reply to you.

Tuesday, February 18, 2014

Care Conference February 11

These notes were from the fourth "Care Conference" that took place last week. A number of posts have reflected what has been going on since that meeting.

I find that by keeping running notes on my computer I am able to remember (and address) all of the issues that come up between conferences. I make a copy for each person attending which facilitates the discussion.

Usually attending are the head nurse, social worker. Sometimes attending are dietitian, activities director, physical therapist. At times various building supervisors attend. Each person mentioned above are for the fifth floor and each person has an entire building supervisor.

Many of the items listed in this set of notes were changed drastically or no longer an issue because of Gregory's seizure. For now he is in a wheel chair until (or if) he regains his strength and becomes mobil again. Because he is not mobil he ends up messing his pants and has to be changed with the help of four people, who move him to his bed and clean him up.

He needs help feeding himself and I have hired a man to be with him from 11:30 - 5:30 (which covers both lunch and dinner.) The additional help was requested by Lieberman but I also think it is a good idea. That way someone will be with Gregory on a one to one for at least part of the day helping him, providing activities and distractions. 

I have been visiting for two or three hours a day but once and a while I take the day off. Part of what the following list shows is how helpful Lieberman is, how much I have to communicate in my new role as Secondary Care Giver, how people in Gregory's position need an advocate, and in many ways points out how the situation for me is different but none-the-less difficult.  

When moved he is in pain?
TED socks/swelling?
More than one pair?
Fall mat?
Plug cover?

Chocolate Pudding

Dilantin Levels Test?

Flu Med?
Pain Med?

Fluocinolone Oil?
Tushie Rash Cream?
Cordran Tape (I apply?)

Vitamin E
Ginko Biloba
Aricept (Day Time)?
Liquid Vitamins
Liquid Minerals

PRN Haldol
PRN Xanax (Alprazolam)

Medicine Chest Lock
New toilet bars?
Try every few hours
Before or after meals
Plastic Urinal Box?
Record Keeping
Successes & accidents
Bowel movements
Paper pants changed?
Rash/irritated bottom?

Eegee only w/ Greg?
Permanent AM/PM?

Face Moisturizer?
Body Lotion?
Finger food vs extra help
Fresh vegetables
Fresh fruit
Snack in PM
Prune Juice w/ bkfst

OT / PT (Medicare?)
How often?
Aimed at balance & walking?

Medicare 100 days?
Continuation determined?



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