FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!

PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.

Tuesday, February 18, 2014

Care Conference February 11

These notes were from the fourth "Care Conference" that took place last week. A number of posts have reflected what has been going on since that meeting.

I find that by keeping running notes on my computer I am able to remember (and address) all of the issues that come up between conferences. I make a copy for each person attending which facilitates the discussion.

Usually attending are the head nurse, social worker. Sometimes attending are dietitian, activities director, physical therapist. At times various building supervisors attend. Each person mentioned above are for the fifth floor and each person has an entire building supervisor.

Many of the items listed in this set of notes were changed drastically or no longer an issue because of Gregory's seizure. For now he is in a wheel chair until (or if) he regains his strength and becomes mobil again. Because he is not mobil he ends up messing his pants and has to be changed with the help of four people, who move him to his bed and clean him up.

He needs help feeding himself and I have hired a man to be with him from 11:30 - 5:30 (which covers both lunch and dinner.) The additional help was requested by Lieberman but I also think it is a good idea. That way someone will be with Gregory on a one to one for at least part of the day helping him, providing activities and distractions. 

I have been visiting for two or three hours a day but once and a while I take the day off. Part of what the following list shows is how helpful Lieberman is, how much I have to communicate in my new role as Secondary Care Giver, how people in Gregory's position need an advocate, and in many ways points out how the situation for me is different but none-the-less difficult.  

MEDICATION
When moved he is in pain?
TED socks/swelling?
More than one pair?
Fall mat?
Plug cover?

Chocolate Pudding
Crushed

Dilantin
Dilantin Levels Test?

Flu Med?
Pain Med?

Fluocinolone Oil?
Tushie Rash Cream?
Cordran Tape (I apply?)

Tumeric
Vitamin E
Ginko Biloba
Namenda 
Aricept (Day Time)?
Liquid Vitamins
Liquid Minerals

PRN Haldol
PRN Xanax (Alprazolam)

TOILETING
Medicine Chest Lock
New toilet bars?
Try every few hours
Before or after meals
Plastic Urinal Box?
Record Keeping
Attempts
Successes & accidents
Bowel movements
Paper pants changed?
Rash/irritated bottom?

RESIDENT CARE AIDE
Eegee only w/ Greg?
Permanent AM/PM?
Non-Floating?

GROOMING
When?
Shaving
Face Moisturizer?
Deodorant?
Body Lotion?
NOURISHMENT
Finger food vs extra help
Fresh vegetables
Fresh fruit
Snack in PM
Prune Juice w/ bkfst

OT / PT (Medicare?)
How often?
Aimed at balance & walking?

SKILLED NURSING (?)
Medicare 100 days?
Continuation determined?

NEW LONGER BED
When?

SLEEP HABITS
Wake
Naps
Bedtime


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