FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!

PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.

Tuesday, August 27, 2013

First Day, New Companion

On Aug 27, 2013, at 12:57 PM, A wrote:
Hi Michael,

Tomorrow is the first time when I will be spending time with Greg alone. I am super duper excited about it and also a little anxious. Last minute checklist, what all are things that I have to keep in mind. I have read the docs and some of the blogs, I just need some inputs from your experience and also a short list of things that you think would be nice to do.

Looking forward to your reply.

Thanks and Regards,      A


A,

The anxiety is expected. I am a little anxious as well. Gregory, with his Alzheimer's BUFFER, has no fears or doubts. 

First, when I send a calendar notice, please let me know as soon as possible that you received it and that the day and time are OK with you. Often we will book our times when you are here so we can look at the calendar together. I want to be sensitive to your schedule and needs as well as "locking in" my schedules.

Getting used to being with Gregory and what to do will take time and experience. As you get to know his abilities (or lack of them) you will be able to make your decisions more easily on how to spend your time with him. You will be able to guess at what he is trying to say. Give him time to formulate his needs. Try not to offer too many suggestions at a time. Sometimes understand that "trying to help" complicates things.

Also, whenever a question comes up you should feel free to text or call. Even little details like "Where is the milk?" After your time with Gregory, you and I will make some private time to debrief and address any questions/issues/concerns you may have.

PRIMARY: Gregory's safety, especially when outside. Never leave him alone. For example, you do not have to watch him pee but be in the same room at the restaurant. At home he can navigate the condo by himself but for example you wouldn't want to let him take out the garbage by himself.

On your first time together I would suggest you not venture too far from the condo. Take a walk to the lake. It is not too far, G loves the lake. There is a lot to see and watch there. People, the dog beach, etc. Sit in the shade and watch the world go by. KEEP AN EYE FOR FATIGUE REMEMBERING THAT HE HAS TO WALK THE SAME DISTANCE BACK HOME. MAKE SURE HE TAKES A WATER BOTTLE. It is supposed to be less hot tomorrow. 

Often G like to take a nap (either on the sofa or in the bedroom) when he gets back. 

You could also sit on the balcony, look through a book that Gregory grabs for you to share. Again, while all his memories and intelligence still exist, the Alzheimer's prevents it from being accessed. 

I'll show you how to use the HVAC (Heating Ventilation Air Conditioning,) if he or you are too cold or too hot. Also this time how to use the coffee machine and where the cookies are. Next time I'll show you how to run the music. On Saturday we will do a Swimming dry run. Next week we'll look at the TV and running DVD's.

Every now and then, (a couple hours) and especially before the walk, suggest that Gregory use the bathroom.

I usually post these kind of e-mails on my BLOG because it helps our family and friends and readers keep in touch with our "progress" and sometimes offers good suggestions for when they are with Gregory or other loved ones who are dealing with dementia. 

Looking forward as well,
m





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