FOR GREGORY. He was not a VICTIM of ALZHEIMER'S DISEASE, he was a HERO!

PLEASE NOTE: Even though this blog is now dormant there are many useful, insightful posts. Scroll back from the end or forward from the beginning. Also, check out my writer's blog. Periodically I will add posts here if they provide additional information about living well with Dementia / Alzheimer's Disease.

Sunday, February 20, 2011

Words In Common

What do the following words have in common: closet, fork, pocket, water, guest room, scarf, underwear, sandwich, cell phone, pillow, dish washer?

For most people the words have nothing in common but in Gregory and my world, the commonality is that they are all associations with meaning that do not work regularly anymore. There are many other words in the list which come and go and sometimes disappear forever.

The problem is two fold: 1) A thought is expressed with words, 2) Words trigger thoughts. Recently, neither are functioning predictably. Up until now Gregory's struggled with being able to pull the words to match his thinking, now hearing words does not pull the correct or any image in his thinking.

First his use and recall of language began to suffer. He was not always able to put words to his thoughts. The thoughts and memories still existed, perhaps like a photograph in his mind, but he was not able to describe that picture with words (a skill which you I and I take for granted.) Sometimes between the two of us, we are able to attach words to the picture and sometimes the picture fades before that is accomplished.

Now other people's use of language doesn't always work for him. He is increasingly not making associations between the spoken word and its referent. That seems to tell me that the pictures my still exist but in his mind but now the pictures do not have the cognitive labels they used to.

In the past, when he would hear the word "glove" he would see the image "glove" in his mind even though he might not be able to say the word "glove" when he was thinking about one. Now those associations are taking a new turn and increasingly he cannot do either on his own. Sometimes when I say "glove" he thinks "scarf," sometimes he thinks "glove," and sometimes he thinks nothing. When he is looking for his gloves he does not know what to call them. When I ask where his gloves are, he does not know what that means.

Again, with the passage of time,we become more and more aware that the rules of this game not only are constantly shifting, but most often do not exist. Go figure that one out!

4 comments:

  1. So heartbreaking. My thoughts and prayers are with both of you. We love you, Renee & Lily

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  2. Hello Michael,my name is Angèle and I am so thankful for coming across your blog today. My mum has severe Alzheimer's. I read your blog posts and appreciated peeking into someone elses life with Alzheimer's. I don't feel so alone.My situation is somewhat different but pain is pain.
    If I met you in person, I would want to give you a big hug and say I am sorry for every loss big and small you experience, and that you are so loving to Gregory. I hope you have a great day today because you touched someones heart. Thank you for caring about others who care about Alzheimer's.

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  3. Thank you, Michael, for sharing your love for Gregory with me. You and Gregory define love as respect, dignity and kindness..which, in today's world, is so often lost.
    Susan K.

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  4. Renee, Lily, Angéle, Susan,
    Not sure if you'll see my comments to your comments but I wanted to thanks you for leaving them. It makes me feel amazingly good that I touch others with my writing and in turn I feel less alone. So thank you. You all have touched me today with a loving hug.

    ReplyDelete

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