Periodically I will add posts here if the sources provide additioanl informaiton on how to think about and deal with Dementia/ Alzheimer's Disease.
SCROLL DOWN FOR TEXT and BIBLIOGRAPHY from DAI WEBINAR 2/22-23/2017. You can also find this information on my website: www.horvich.com
Even though this blog is now dormant (see info below) there are many useful, insightful posts. Scroll back from the end or forward from the beginning. My guess is that you could spend a lot of time here and maybe learn or experience a thing or two about living with and loving someone with Dementia/Alzheimer's or maybe come away with the feeling that "you are not alone" in YOUR work with the same!
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THIS WAS THE FINAL POST TO THIS SITE BEFORE IT WENT DORMANT.
Happy New Year 2016. With a new year comes new beginnings and sometimes endings. If I am personally progressing and if I am doing a good job in my grieving Gregory's death; if I have been able to learn my lessons in living and loving someone diagnosed with Dementia/ Alzheimer's; if I am to get on with my life ... I need to bring this Alzheimer's blog to an end since my writing has been dealing less with Dementia/ Alzheimer's and more with life after Dementia/ Alzheimer's.
Of course, I will always continue to work for and support fair treatment on behalf of people with Dementia/ Alzheimer's and may post here from time to time. Also, there are many wonderful posts here through which you may browse.
With this change, I will continue and reinvigorate my "michael a. horvich writes" blog which deals with grieving Gregory's death, life lessons, personal experiences, observations, memoirs, dreams, and humor in essay and poetry, as well as an attempt now and then at sharing a piece of fiction.
Please follow me there by clicking http://mhorvich.blogspot.com or click the link located on the right side of this page.
Finally, COMMENTS are always important to me and you can still comment on the posts on this blog! CLICK "Comments" and sign in or use "Anonymous." Leave your name or initials if you wish so I'll know it's you? Check the "Notify Me" box to see my reply to you.
Saturday, May 17, 2014
He would comment on how young Gregory was and how good looking. He wondered if I was his father but didn't flinch when I told him I has Gregory's life partner. "How wonderful!" he said at finding out we just celebrated our 39th anniversary. "Babies," he said, "Ours is 75."
Sometimes Betty was in a good mood and the six of us would chat. (Marvin, Betty, Vera, Gregory, Manny, and me.) Other times she was unhappy, complaining, and argumentative with Marvin. But Marvin loved her and would always answer "Pretty well!" when I asked how he was doing.
Vera was Betty's helper but also helped Marvin. She would pick him up at home, bring him to Lieberman, take him back home after his visit, and return to be with Betty, then get back to help Marvin by evening.
The difficult part is that one comes to love these people, this community of Alzheimer's design. One comes to look forward to seeing them every day, to having the same narrow conversation, to feel part of the community.
Then one day a laminated blue Dove is flying on an 81/2 x 11 piece of white cardboard hung on the door of their room. Sometimes you don't get even that much warning. You commiserate, you hold back your emotions, you are supportive. You offer your wishes for the best.
This is the unspoken way of dealing with an imminent death. In a few days the room is empty and the partner no longer comes to Lieberman. The helper is no longer there to smile at. You do not get the chance to say you are sorry, or goodbye, or even it's been nice.
You move on but the emotions follow for a few days until the next person occupies that room. And the cycle begins again. For a week, or a month or maybe for years the cycle repeats. But it circles and you continue until your own loved one's room flies its Dove.
Safe travels Betty. In your small way, I'll miss you. Thank you for the reminder that there are happy endings.