FOR GREGORY

Periodically I will add posts here if the sources provide additioanl informaiton on how to think about and deal with Dementia/ Alzheimer's Disease.

PLEASE NOTE:


SCROLL DOWN FOR TEXT and BIBLIOGRAPHY from DAI WEBINAR 2/22-23/2017. You can also find this information on my website: www.horvich.com


Even though this blog is now dormant (see info below) there are many useful, insightful posts. Scroll back from the end or forward from the beginning. My guess is that you could spend a lot of time here and maybe learn or experience a thing or two about living with and loving someone with Dementia/Alzheimer's or maybe come away with the feeling that "you are not alone" in YOUR work with the same!


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THIS WAS THE FINAL POST TO THIS SITE BEFORE IT WENT DORMANT.


Happy New Year 2016. With a new year comes new beginnings and sometimes endings. If I am personally progressing and if I am doing a good job in my grieving Gregory's death; if I have been able to learn my lessons in living and loving someone diagnosed with Dementia/ Alzheimer's; if I am to get on with my life ... I need to bring this Alzheimer's blog to an end since my writing has been dealing less with Dementia/ Alzheimer's and more with life after Dementia/ Alzheimer's.


Of course, I will always continue to work for and support fair treatment on behalf of people with Dementia/ Alzheimer's and may post here from time to time. Also, there are many wonderful posts here through which you may browse.


With this change, I will continue and reinvigorate my "michael a. horvich writes" blog which deals with grieving Gregory's death, life lessons, personal experiences, observations, memoirs, dreams, and humor in essay and poetry, as well as an attempt now and then at sharing a piece of fiction.


Please follow me there by clicking http://mhorvich.blogspot.com or click the link located on the right side of this page.


Finally, COMMENTS are always important to me and you can still comment on the posts on this blog! CLICK "Comments" and sign in or use "Anonymous." Leave your name or initials if you wish so I'll know it's you? Check the "Notify Me" box to see my reply to you.



Saturday, April 25, 2015

Clearer by Day

Last night after the call from Gregory's private nurse about his continued coughing and possible aspiration, I reaffirmed my decision of "No Heroics," if he is dying just hold his hand. Both Gregory and I had talked about this previously and often.

But afterwards I was left alone in the condo with my sorrow, my fears, my wondering what the future would bring. Usually I am able to keep those emotions under control and allow them to surface for brief periods of time. But last night I lost sleep and until the light of day shed a new look at life, I slept little.

Visiting Gregory today was up-lifting. He was still coughing and sounded sinusy but he was in a good mood, was not uncomfortable, laughed a lot, and sang along with me to "When You're Smiling."

When the Hospice nurse came in I introduced her to Gregory as a special nurse to make sure he stayed healthy. He was so communicative and correctly answered "Yes" to all the questions I posed to him like, "Are you feeling OK?" "Are you happy." "Is your chest feeling better?" Then I switched, not knowing where we would go, and said, "Are you feeling terrible?" And after four or five "Yeses" he correctly answered, "No." Both the nurse and I were pleased and amazed!

The Hospice nurse was wonderful, examined Gregory, and finished up the paperwork. She believes, for what it is worth, that Gregory does not have Alzheimer's but rather the form of dementia called Fontal Lobal Dementia. It presents itself differently than Alzheimer's and while in some ways it is all the same in the long run, I had myself often though the same. It felt good to be validated in my thinking.

So I feel empowered knowing that for now Hospice is in place in case Gregory's aspiration turns to Pneumonia, that they will be ready to help keep him comfortable whether he decides to stay with us or to leave us behind, that minimally he will have an additional nurse to look after him, and by the "Light of Day," I am feeling relieved and better.


2 comments:

  1. the roller coaster keeps rolling doesn't it Michael? Sending thoughts and prayers your way <3

    ReplyDelete
    Replies
    1. I remember as a child attending Riverview Park in Chicago, when the Roller Coaster would stop back in the station after a thrilling ride, the engineer would announce, "Ride again, 5₵." I would always ride again as I find myself doing now! Thanks Susan.

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